A simple night out can leave me in bed for days…
Extreme fatigue is a massive symptom of ankylosing spondylitis. At least, for me it is. It’s also one of the most frustrating symptoms that I deal with. A huge part of being a young person with a chronic illness, that I feel, is trying to be “normal”. Trying to live a...
Diagnosis denial – beware!
Can you really be in denial about your diagnosis? I was diagnosed with AS (ankylosing spondylitis) aged 24. If I am honest it was a real inconvenience. I was, what I thought coming up to the peak of my life, my health, young, free and starting my career as a...Not Today! – Ben’s message to ankylosing spondylitis
Ben started with episodes of back, hip, neck and knee pain aged 8 just after he’d had scarlet fever. Fortunately for him, the GP was a little more switched on by then as his Mum has been diagnosed some 8 years before. At the time he said it seemed likely that...
Life with an Invisible Illness
Two university students talk about the struggles of living with an invisible illness – axial spondyloarthritis and inflammatory bowel disease – sharing their personal experience and advice. Bethany D has suffered with chronic pain since the age of 13...Dealing with a gremlin called ankylosing spondylitis
Dealing with a gremlin called ankylosing spondylitis on a daily basis can be exhausting. Faye is a physio, but she also lives with AS and shares her experiences (as well as some very useful tips!) in her vlogs on Youtube: I was diagnosed unexpectedly 6...Join ASone Community
Help us grow the ASone community! Share your story, opinions and experiences by contacting Peter on peterdowson@nass.co.uk
Join Us
Join us on our next day out in London