I knew the cure wasn’t at the bottom of a bottle, but that didn’t stop me from looking there
In the first piece I ever wrote, I mentioned that when my symptoms were at their worst that ‘I turned to alcohol to cope because my anti-inflammatory tablets weren’t working and when I was drunk there was no pain, and I could move around easier’. Now, since I’ve been...
An Occupational Therapists Journey with axial SpA
It took 10 years for me to get diagnosed. When reflecting on my story and journey, I think the most challenging part was the road it took to get a diagnosis of ankylosing spondylitis. Spreading awareness of axial SpA (AS) is so important to me because why should...
Talking to your employer about AS – tips and advice
The idea of talking to your employer about axial spondyloarthritis, chronic pain and fatigue can be a scary prospect. It was for me, but as I described in last week’s article, talking to my employer about my AS, how it affected me and what I needed to help...
How coaching could change the way you live with axial SpA
I first came across coaching as I was reflecting on my work situation and my need for a change. Living with axial SpA (AS) had significantly changed my life and my perspective. Five years after my diagnosis, it became clear that a desk-based job was not...
AS isn’t the end of who you are – it isn’t the end of life as you want it to be
I’m 63 and I’ve had AS since I was 20. Yesterday my husband (of all 43 AS years) and I walked 10 miles of the Wye Valley Walk – the section from Ross on Wye to Fownhope – and very beautiful it was. So if you’re young with AS, or just starting the AS journey –...Join ASone Community
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