I knew the cure wasn’t at the bottom of a bottle, but that didn’t stop me from looking there
In the first piece I ever wrote, I mentioned that when my symptoms were at their worst that ‘I turned to alcohol to cope because my anti-inflammatory tablets weren’t working and when I was drunk there was no pain, and I could move around easier’. Now, since I’ve been...
An Occupational Therapists Journey with axial SpA
It took 10 years for me to get diagnosed. When reflecting on my story and journey, I think the most challenging part was the road it took to get a diagnosis of ankylosing spondylitis. Spreading awareness of axial SpA (AS) is so important to me because why should...
Talking to your employer about AS – tips and advice
The idea of talking to your employer about axial spondyloarthritis, chronic pain and fatigue can be a scary prospect. It was for me, but as I described in last week’s article, talking to my employer about my AS, how it affected me and what I needed to help...
What happened when I told my employer about my AS
In the 22 years that I’ve had ankylosing spondylitis, one of the biggest problems I struggle with is that there is no instruction manual on how to approach various aspects of life when you have chronic pain, such as work, relationships and socialising. The answers are...
Locked down but not alone
My name is Kirsty, I’m 29 years old and I was eventually diagnosed two years ago with non-radiographic axial spondyloarthritis, after suffering with debilitating back pain since I was teenager. My 8 year journey to diagnosis When I was 19...Join ASone Community
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