An Occupational Therapists Journey with axial SpA
It took 10 years for me to get diagnosed. When reflecting on my story and journey, I think the most challenging part was the road it took to get a diagnosis of ankylosing spondylitis. Spreading awareness of axial SpA (AS) is so important to me because why should...
Talking to your employer about AS – tips and advice
The idea of talking to your employer about axial spondyloarthritis, chronic pain and fatigue can be a scary prospect. It was for me, but as I described in last week’s article, talking to my employer about my AS, how it affected me and what I needed to help...
What happened when I told my employer about my AS
In the 22 years that I’ve had ankylosing spondylitis, one of the biggest problems I struggle with is that there is no instruction manual on how to approach various aspects of life when you have chronic pain, such as work, relationships and socialising. The answers are...
Locked down but not alone
My name is Kirsty, I’m 29 years old and I was eventually diagnosed two years ago with non-radiographic axial spondyloarthritis, after suffering with debilitating back pain since I was teenager. My 8 year journey to diagnosis When I was 19...
AS isn’t the end of who you are – it isn’t the end of life as you want it to be
I’m 63 and I’ve had AS since I was 20. Yesterday my husband (of all 43 AS years) and I walked 10 miles of the Wye Valley Walk – the section from Ross on Wye to Fownhope – and very beautiful it was. So if you’re young with AS, or just starting the AS journey –...Join ASone Community
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