Extreme fatigue is a massive symptom of ankylosing spondylitis. At least, for me it is. It’s also one of the most frustrating symptoms that I deal with. A huge part of being a young person with a chronic illness, that I feel, is trying to be “normal”. Trying to live a...
Can you really be in denial about your diagnosis? I was diagnosed with AS (ankylosing spondylitis) aged 24. If I am honest it was a real inconvenience. I was, what I thought coming up to the peak of my life, my health, young, free and starting my career as a...
Ben started with episodes of back, hip, neck and knee pain aged 8 just after he’d had scarlet fever. Fortunately for him, the GP was a little more switched on by then as his Mum has been diagnosed some 8 years before. At the time he said it seemed likely that...
Two university students talk about the struggles of living with an invisible illness – axial spondyloarthritis and inflammatory bowel disease – sharing their personal experience and advice. Bethany D has suffered with chronic pain since the age of 13...
I’ve loved and played music for as long as I can remember… and I won’t let my ankylosing spondylitis diagnosis get in the way of it. I’ve been moved by music as long as I can remember. When I was tiny I had a wind-up toy that played “Somewhere...
Even with the right medical treatment for ankylosing spondylitis it can be easy to lose control of your life and develop unhealthy habits. Sometimes it can spiral out of control and lead to a point where it seems there’s no return. Adam managed to come back from...