Not Today! – Ben’s message to ankylosing spondylitis
Ben started with episodes of back, hip, neck and knee pain aged 8 just after he’d had scarlet fever. Fortunately for him, the GP was a little more switched on by then as his Mum has been diagnosed some 8 years before. At the time he said it seemed likely that...
Life with an Invisible Illness
Two university students talk about the struggles of living with an invisible illness – axial spondyloarthritis and inflammatory bowel disease – sharing their personal experience and advice. Bethany D has suffered with chronic pain since the age of 13...Dealing with a gremlin called ankylosing spondylitis
Dealing with a gremlin called ankylosing spondylitis on a daily basis can be exhausting. Faye is a physio, but she also lives with AS and shares her experiences (as well as some very useful tips!) in her vlogs on Youtube: I was diagnosed unexpectedly 6...
On tour with ankylosing spondylitis: my story and music
I’ve loved and played music for as long as I can remember… and I won’t let my ankylosing spondylitis diagnosis get in the way of it. I’ve been moved by music as long as I can remember. When I was tiny I had a wind-up toy that played “Somewhere...
Taking back control from ankylosing spondylitis
Even with the right medical treatment for ankylosing spondylitis it can be easy to lose control of your life and develop unhealthy habits. Sometimes it can spiral out of control and lead to a point where it seems there’s no return. Adam managed to come back from...Join ASone Community
Help us grow the ASone community! Share your story, opinions and experiences by contacting Peter on peterdowson@nass.co.uk
Join Us
Join us on our next day out in London