Friendly Fires

Friendly Fires

Itching, burning, blinding lights At the close, flashing whites Sticky lens, blurry mist Dancing dots twist. Big pools of black, perfect round Tiny halo of brown. Restricted levers, robotic stiff Brittle, snap, click Bulging knees, curling toes Joints scrape with...
A Day in the Life – of a girl with A.S.

A Day in the Life – of a girl with A.S.

Imagine being so tired that you head to bed early, only to lay awake on account of not being able to find a comfortable position. Imagine finally falling asleep, but waking up every hour to switch what side you’re laying on because your hips ache and your knee...
Rainbows and Stars – My Story

Rainbows and Stars – My Story

I have recently been diagnosed with AS – even though it has been two months, I still can’t quite believe it even after numerous hospital visits and a lot of literature! 2018 has been rather unreal for me. January started when I developed uveitis after...
ASone live meetup, we need your thoughts!

ASone live meetup, we need your thoughts!

Hello everyone! We’re planning to launch a series of live events for young people with AS living in the UK later this year and wanted to find out what are your initial thoughts on this idea. Your opinion matters the most to us and before we start planning...
Let us know about your music festival experiences!

Let us know about your music festival experiences!

Hello Folks!   We want to create a music festival guide for all those with AS, but we need your help to get it done properly. This message goes to all festival-goers, camping enthusiasts, globetrotters and music fans who’s never missed a gig. Let us know what’s...

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