Vlogging about AS in my 20s
Hi all, Hope you’re all safe and sound during this time. My name is Dasha and I’m pretty new to this platform and AS (diagnosed in Jan 2020). It’s been a pretty scary and emotional diagnosis but I’m much better now and decided to start vlogging...
COVID-19: Why we should all be staying at home
I’m a Young Adult and I’m Scared of COVID-19. Hi, my name is Steff Di Pardo and I’m a 24-year-old from Canada. And I’m scared of COVID-19. Why? I’m a young person, I shouldn’t be scared, right? Wrong. Very wrong. I have Ankylosing Spondylitis and I’m on...
Pubs, Clubs, and Chronic Pain: A guide to socializing with axial SpA
The bar scene in my university town is loud and lively. Young people are dancing, drinking, and laughing. Colourful lights bounce like the beat of the music. I walk into the bar, but instead of heading for the dance floor, my eyes frantically search for the nearest...
Getting Involved: Discussing Diagnosis Delays
So, I went to Keele University recently to attend a discussion on axial SpA and why there are often delays in diagnosing someone with the condition. It was a really interesting and eye-opening session for me. While I really want to report my experience, I obviously...
What it’s like to love someone with ankylosing spondylitis
It can’t be easy being with someone who has ankylosing spondylitis, to love every part of them, including the disease. We all feel sorry for the AS patient sure, but what’s it like for their partner? The person who lives with them day in-day out, sleeps beside them...Join ASone Community
Help us grow the ASone community! Share your story, opinions and experiences by contacting Peter on peterdowson@nass.co.uk
Join Us
Join us on our next day out in London