From panic attack to self-care and hoping for a change – my way of dealing with ankylosing spondylitis.
After I was diagnosed with ankylosing spondylitis, I forgot how to trust my body. I have always been a healthy person with very few physical limitations and all of a sudden, I’ve found out that my body was attacking itself and slowly deteriorating. Finding out about a...
A simple night out can leave me in bed for days…
Extreme fatigue is a massive symptom of ankylosing spondylitis. At least, for me it is. It’s also one of the most frustrating symptoms that I deal with. A huge part of being a young person with a chronic illness, that I feel, is trying to be “normal”. Trying to live a...
Diagnosis denial – beware!
Can you really be in denial about your diagnosis? I was diagnosed with AS (ankylosing spondylitis) aged 24. If I am honest it was a real inconvenience. I was, what I thought coming up to the peak of my life, my health, young, free and starting my career as a...Not Today! – Ben’s message to ankylosing spondylitis
Ben started with episodes of back, hip, neck and knee pain aged 8 just after he’d had scarlet fever. Fortunately for him, the GP was a little more switched on by then as his Mum has been diagnosed some 8 years before. At the time he said it seemed likely that...
Life with an Invisible Illness
Two university students talk about the struggles of living with an invisible illness – axial spondyloarthritis and inflammatory bowel disease – sharing their personal experience and advice. Bethany D has suffered with chronic pain since the age of 13...Join ASone Community
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