COVID-19: Why we should all be staying at home
I’m a Young Adult and I’m Scared of COVID-19. Hi, my name is Steff Di Pardo and I’m a 24-year-old from Canada. And I’m scared of COVID-19. Why? I’m a young person, I shouldn’t be scared, right? Wrong. Very wrong. I have Ankylosing Spondylitis and I’m on...
Pubs, Clubs, and Chronic Pain: A guide to socializing with axial SpA
The bar scene in my university town is loud and lively. Young people are dancing, drinking, and laughing. Colourful lights bounce like the beat of the music. I walk into the bar, but instead of heading for the dance floor, my eyes frantically search for the nearest...
Getting Involved: Discussing Diagnosis Delays
So, I went to Keele University recently to attend a discussion on axial SpA and why there are often delays in diagnosing someone with the condition. It was a really interesting and eye-opening session for me. While I really want to report my experience, I obviously...
What it’s like to love someone with ankylosing spondylitis
It can’t be easy being with someone who has ankylosing spondylitis, to love every part of them, including the disease. We all feel sorry for the AS patient sure, but what’s it like for their partner? The person who lives with them day in-day out, sleeps beside them...
Time to Talk: My Axial SpA (AS) Journey – Development, where I am now and what I need to do to keep moving forward
I’m Jack Posnett, I’m 22 and I have axial spondyloarthritis. I never thought I’d want to openly talk about my own experience with arthritis. I was happy enough reading and being inspired by other people’s journeys, the challenges they face and what they do to overcome...Join ASone Community
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