Imagine being so tired that you head to bed early, only to lay awake on account of not being able to find a comfortable position.
Imagine finally falling asleep, but waking up every hour to switch what side you’re laying on because your hips ache and your knee is going numb.
Imagine waking up in the morning in so much numb pain that you don’t want to get out of bed but know that you have to make it to work in an hour and don’t have time to waste on feeling pain.
Imagine getting a glass of water and taking your pain med, not sure if it will work today or if you are going to suffer but not be able to take anything else because your pain med is supposed to work for 24 hours.
Imagine wanting to grab breakfast before work but not being able to eat the same things as other people so you can’t go out not knowing what there will be to buy at the store.
Imagine going to work and spending all day walking, sitting, standing, engaging, smiling, and wishing you could sit down for just five minutes.
Imagine going to the bathroom and your thighs sting when you squat over the toilet.
Imagine all your coworkers planning to go out to after work and you want to go, but you don’t want to because you don’t know if your low pain level will last through an evening out or if your pain meds will wear off early.
Imagine waking up everyday and going through the same pattern of not wanting to get up, getting up and taking medicine, not being able to eat what everyone else does, not knowing how each movement will affect you through the day, experiencing pain through the simplest task (like peeing), and then not having a social life because your life is a guessing game every day and night.
Imagine that.
That is a day in the life- of a girl with Ankylosing Spondylitis.
That is a day in my life.
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