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What the ‘fuse’? Ankylosing spondylitis won’t bring me down!
I was diagnosed with ankylosing spondylitis just over 2 years ago. As soon as I was told by my doctors about it and heard the word ‘fuse’, it really got to me.
read morePutting a name to it: journey to diagnosis.
On Wednesday, last week, my diagnosis of ankylosing spondylitis was confirmed by a Rheumatologist. It’s been an odd journey getting a diagnosis, and I’m still not sure what to do about it.
read moreNever giving up with ankylosing spondylitis
It all started 7 years ago, I was in a lot of pain, so much pain! I was at home hosting my brother’s birthday party and I couldn’t hide the pain any longer. I went to my bedroom and closed the door, thinking and wishing that I will be better after some stretching. I got on the floor and then I couldn’t move, I couldn’t get back on my feet, even breathing hurt, I tried to scream for help, but the pain was too much plus the door was closed and the crowd was too far from me.
read moreRuss journey to eat, sleep and breath Zumba
Russ Welch is 35 years young, he’s been Zumba instructor for over a year now and still learning. He was born deaf and as a result he’s 85% deaf in both ears. He also has ankylosing spondylitis which affects and can limit the movement in his back.
‘My health has always been at the forefront of my difficulties, but I seem to manage well in my classes now due to Zumba enhancing my flexibility, I am surprisingly 10 cm’s more bendy!’
A parrot, three dogs and ankylosing spondylitis
I’ve always loved animals; from the smallest bugs to the biggest mammals. So having pets was an obvious goal but I’d never anticipated how it would affect my life with ankylosing spondylitis.
read moreArthritis?! Isn’t that for old people? Well, no… My experience with ankylosing spondylitis
I felt like a huge weight came off my chest after making this video. It is important to be open and frank about the challenges we face. I hope to inspire others that suffer from any conditions to keep pushing and to not let it dictate them as a person. Climbing has become such a big part of my identity not only because of how fun it is, but also as a constant reminder that I have managed to persevere beyond what I thought capable of.
read moreThe Butterfly Effect of Ankylosing Spondylitis
My Dad was recently diagnosed with ankylosing spondylitis. Having to deal with this as a family and accept that there is no cure has brought us closer. At first I thought there would be a huge overwhelming feeling of hopelessness amongst us all, everyone giving each other sympathetic knowing looks. But it’s been the complete opposite.
read moreThe summer adventure with a backpack and spondyloarthritis
I recently headed off backpacking around Europe with my friend. You can see our route on the picture above. I was a bit apprehensive. It’s the first time I’ve travelled so far, I’d be travelling across 6 different countries, and the first time I’ve backpacked.
read moreIncurable, the word that changed my life
I sat at the other side of the desk to my rheumatologist, something I was used to by this point. But this wasn’t quite the normal visit. My mum sat slightly behind me, questioning the Doctor on what the solution was to all my problems. Nothing could prepare me for what I was about to hear. “This condition is incurable.” My heart sank.
read moreSmall steps to help you manage your ankylosing spondylitis symptoms
Ankylosing spondylitis can be an overwhelming diagnosis. Luckily, there are lots of small steps that you can take each day to help manage your symptoms and reduce the impact they have on your daily life.
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