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Not Today! – Ben’s message to ankylosing spondylitis
Ben experienced a series of blows in a short space of time but coped brilliantly with both ankylosing spondylitis and diabetes. He is currently at a six month conservation internship in the Peruvian Amazon jungle (as you can see in the video!) and is absolutely loving it, telling AS ‘Not Today!’ on a daily basis.
read moreLife with an Invisible Illness
Two university students talk about the struggles of living with an invisible illness – axial spondyloarthritis and inflammatory bowel disease – sharing their personal experience and advice.
read moreWhat a person living with axial SpA (ankylosing spondylitis) can expect from their first visit to an osteopath
I understand that when you’re in pain because of axial SpA (ankylosing spondylitis), it can be a nervous experience seeing an osteopath or other healthcare practitioner for the first time. I hope that I can demystify it a little by explaining what happens in a typical osteopathic consultation.
read moreDealing with a gremlin called ankylosing spondylitis
Dealing with a gremlin called ankylosing spondylitis on a daily basis can be exhausting. Faye is a physio, but she also lives with AS and shares her experiences (as well as some very useful tips!) in her vlogs on Youtube.
read moreGoing on holiday? Things to remember with your ankylosing spondylitis.
Going on holiday even for just a week requires a lot more preparation for us (living with ankylosing spondylitis) than just packing enough underwear and sun cream! I’ve been away a fair few times since my diagnosis and have learnt a good few tips along the way.
read moreOn tour with ankylosing spondylitis: my story and music
I’ve loved and played music for as long as I can remember… and I won’t let my ankylosing spondylitis diagnosis get in the way of it.
read moreTaking back control from ankylosing spondylitis
Even with right medical treatment for ankylosing spondylitis it can be easy to lose control of your life and develop unhealthy habits. Sometimes it can spiral out of control and lead to a point where it seems there’s no return. Adam managed to come back from what appeared to be a hopeless situation and managed to transform both his body and life. His story not only shows that it’s never too late to get back in control, but also underlines the importance of professional support and healthy lifestyle in AS.
read moreIn My Bones – living with ankylosing spondylitis
In My Bones is a short documentary depicting personal experiences and daily struggles of people living with ankylosing spondylitis.
read moreparkrun for people with ankylosing spondylitis
Parkruns are fun and sociable opportunities for people with ankylosing spondylitis to participate in some physical activity. They are free 5k events, coordinated entirely by local volunteers, that take place every Saturday morning in 540 parks and open spaces across the UK. Parkrun is open to everyone and is whatever you want it to be – you can walk, run or volunteer – and each event finishes with a chat and a cuppa.
read moreWork with ankylosing spondylitis: importance of a safety net.
I thought it might be helpful for some of you, younger folks, just embarking on the world of full time employment if I give you my personal story of tackling the abyss of full time work with ankylosing spondylitis. Especially, as recently this has had affected my job considerably.
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