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Guest Blog – As shielding comes to an end in England, do you feel safe?
The UK Government has now announced that from 1st August, those of us who have been shielding will be allowed to meet outside in groups and go back to work if their workplace is secure. It also means an end to statutory sick pay and the delivery of essential food...
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A chiropractors journey to AxialSpA diagnosis – why it’s so easy to be lost in the ether
My name is Shane Derbyshire and I am a Chiropractor working in Norfolk and I was diagnosed with AxSpa in 2018. Although I had what might be described as a “textbook case”, the journey to diagnosis was far from smooth and full of opportunities to become lost in...
read moreVlogging about AS in my 20s
Hi all, Hope you’re all safe and sound during this time. My name is Dasha and I’m pretty new to this platform and AS (diagnosed in Jan 2020). It’s been a pretty scary and emotional diagnosis but I’m much better now and decided to start vlogging...
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COVID-19: Why we should all be staying at home
I’m a Young Adult and I’m Scared of COVID-19. Hi, my name is Steff Di Pardo and I’m a 24-year-old from Canada. And I’m scared of COVID-19. Why? I’m a young person, I shouldn’t be scared, right? Wrong. Very wrong. I have Ankylosing Spondylitis and I’m on...
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Pubs, Clubs, and Chronic Pain: A guide to socializing with axial SpA
The bar scene in my university town is loud and lively. Young people are dancing, drinking, and laughing. Colourful lights bounce like the beat of the music. I walk into the bar, but instead of heading for the dance floor, my eyes frantically search for the nearest...
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Getting Involved: Discussing Diagnosis Delays
So, I went to Keele University recently to attend a discussion on axial SpA and why there are often delays in diagnosing someone with the condition. It was a really interesting and eye-opening session for me. While I really want to report my experience, I obviously...
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What it’s like to love someone with ankylosing spondylitis
It can’t be easy being with someone who has ankylosing spondylitis, to love every part of them, including the disease. We all feel sorry for the AS patient sure, but what’s it like for their partner? The person who lives with them day in-day out, sleeps beside them...
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Time to Talk: My Axial SpA (AS) Journey – Development, where I am now and what I need to do to keep moving forward
I’m Jack Posnett, I’m 22 and I have axial spondyloarthritis. I never thought I’d want to openly talk about my own experience with arthritis. I was happy enough reading and being inspired by other people’s journeys, the challenges they face and what they do to overcome...
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How to talk about your axial SpA (AS) before having sex with someone new
Yes, you can be sexy and disabled. When you slip under the sheets to have sex for the first time with a new partner, it’s normal to have a thousand questions rush through your head. Questions about what they might like, what you like, and the inevitable...
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Anya’s Journey from diagnosis to Taekwondo Champion
In this guest post, Anya shares her story of living with axial SpA (AS) from a young age and overcoming difficult obstacles to achieve sporting success. She wanted to share her story to give hope to any recently diagnosed young people that they can achieve anything!...
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