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I knew the cure wasn’t at the bottom of a bottle, but that didn’t stop me from looking there
In the first piece I ever wrote, I mentioned that when my symptoms were at their worst that ‘I turned to alcohol to cope because my anti-inflammatory tablets weren’t working and when I was drunk there was no pain, and I could move around easier’. Now, since I’ve been...
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An Occupational Therapists Journey with axial SpA
It took 10 years for me to get diagnosed. When reflecting on my story and journey, I think the most challenging part was the road it took to get a diagnosis of ankylosing spondylitis. Spreading awareness of axial SpA (AS) is so important to me because why should...
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Talking to your employer about AS – tips and advice
The idea of talking to your employer about axial spondyloarthritis, chronic pain and fatigue can be a scary prospect. It was for me, but as I described in last week’s article, talking to my employer about my AS, how it affected me and what I needed to help...
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What happened when I told my employer about my AS
In the 22 years that I’ve had ankylosing spondylitis, one of the biggest problems I struggle with is that there is no instruction manual on how to approach various aspects of life when you have chronic pain, such as work, relationships and socialising. The answers are...
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Locked down but not alone
My name is Kirsty, I’m 29 years old and I was eventually diagnosed two years ago with non-radiographic axial spondyloarthritis, after suffering with debilitating back pain since I was teenager. My 8 year journey to diagnosis When I was 19...
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AS isn’t the end of who you are – it isn’t the end of life as you want it to be
I’m 63 and I’ve had AS since I was 20. Yesterday my husband (of all 43 AS years) and I walked 10 miles of the Wye Valley Walk – the section from Ross on Wye to Fownhope – and very beautiful it was. So if you’re young with AS, or just starting the AS journey –...
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How arthritis turned my life upside down
My name is Mark, I am 24 years old, and during the summer of 2019, I was diagnosed with axial spondyloarthritis, also known as ankylosing spondylitis. Everyone seems to be writing a blog these days, so I thought I would give it a go. I have thought about doing...
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Running Businesses with Ankylosing Spondylitis
I’m Richard, a 25-year-old who lives with Ankylosing Spondylitis (AS). I’ve always been inspired by hearing other peoples stories and now feel empowered to share my own experiences which may benefit others and help raise awareness for the condition. ...
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Axial Spondyloarthritis did not beat me, it made me stronger and fitter! – Update!
Back in February 2018 I wrote the below blog which received an amazing positive response from most, so I thought I would post it again with a few alterations. My current physio said that it was a great write up and that it should be shared to inspire those who have...
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On the front line – what it’s like to work as a paramedic with axial SpA (AS)
I was diagnosed in 2015 whilst studying in Australia. Since diagnosis I have been on biologic medication to help control my axial SpA (AS). Training to be a paramedic with axial SpA (AS) has been an eventful journey, with many bumps along the way. Growing up in...
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